Sunday, August 23, 2009
R.A.D. or Not R.A.D. that is the question
Ok. I try my best to be as open minded as possible. I have to tell you. I have seen more and more ANTI-R.A.D. websites popping up on the web with this simple message:
RAD isn't real and R.A.D. is a diagnosis to further the career of attachement therpaists and doctors.
I was shocked beyond words. A listed, documented disorder that has been defined by the medical community is now "junk science?" to line the pockets of doctors and RTC's?
So, in effect, R.A.D. isn't real anymore. It's a spin off of PTSD or some other disorder at least in the minds of some. These groups insist that the suffering of thousands of children and adults is null and void because R.A.D. is a money making scheme?
Ironically, every SINGLE one of the disorder's listed traits I exhibited in spades. The parents that read my blog don't have children with R.A.D., they have PTSD, Depresion and other afflictions.
I can't say I am angry but I wonder how many of these ANTI-RAD groups really understand what real R.A.D. is? Or how destructive it can be. Over diganosed by
doctors with their own interests. I can buy that. To suggest however that R.A.D.
isn't real is something that just nibbles at me.
I have looked into these online groups for their statistical and empirical data and of course, they don't have any data supporting their claims. I say this to those that don't believe R.A.D. is real:
Write to the APA, present your empirical data in a clear way and inspire change to the diagnosis. Until that day happens your not justifying your claims.
That's called junk science.
Michael
http://www.rad-online.org
Michael
Wednesday, August 19, 2009
R.A.D. And Religion (Follow up to email)
I recieved an email today with some words of encouragement from a fellow blogger. This person thanked me for my writeup about R.A.D and religion and urged me to continue to write. Yes, it's dangerous. Yes, to tell a R.A.D. child they are going to hell for something they may have already done is terribly dangerous.
This blogger sent me a video link of something I thought I would share with my fellow readers. This my friends is simply shocking. I don't know what to say. To subject ANY child to this..let alone a R.A.D. child is simply unbelievable. I don't know what to say.
Thank you for sending this to me (You know who you are). I will let the video speak for itself. Thank you for encouraging me to continue writing even though I have gotten alot of hate mail these days.! LOL
One word: Wow
Sunday, August 16, 2009
My Kidnapping (Graphic Post Warning)
Pride hinder's our community's progress
WOW! What can I say! Two of RADOnline's staff DROVE over 1600 miles in three days. We got back and we were exhausted. 8 hours each way, and then another 6 hours in Ohio on Saturday. To say we are sick of cars, roads, traffic and heat is an understatement!! However, it was in the name of good so it was well worth the trip.
It's still hard to believe. 1600 miles in 3 days. ACK! So here I sit getting ready to do 10 miles on the treadmill. ACK!
_____________________________________________________________________
To everyone that read's my blog, everyone knows I am very, very pro awareness. Some think that I preach awareness to the point of being offensive and that's OK. As long a dialogue about everything R.A.D. it's good.
I spoke with an RTC CEO the other day and we agree that our community has to put it's differences and pride aside and begin to unite. The problem is pride. There are so many great forums and groups that have so many awesome ideas out there, it's truly amazing. Imagine for a moment if we could all come together and share our own ideas and stories to facilitate understanding and change without the fear of someone else's pride injected into the conversations.
I have spoken with ALOT of very educated, very successful people (Including PH.D's) over the last few weeks. Every single one of them are really amazing people. My conversations with them always end up with the same message:
We can change, but getting past pride and personal opinion is "an uphill battle" or "almost impossible". Really? Does it have to be that hard? I don't think so.
While I agree it's a tough fight, imagine the good we could do, imagine how many people we could inform if we all chose to say "Our opinion's are ours, but our message is paramount.". Imagine for a moment what we could say to the community and the WORLD if we could put aside our differences for a few weeks and simply talk as professionals, survivors, RAD Parents, RAD Kids and non profits.
We would prove to the world that our message is change, not personal gain or acknowledgement. We would show everyone around us our very message isn't muddled with the politics and religious beliefs that has kept our community in the dark (to an extent).
I will be the first to admit, that I have "ruffled some feather's" in the community, which of course was not exactly what I was intending to do but was done regardless. It is my true belief that dialogue begins with placing pride aside and acknowledging the fact that I am willing to listen to varying opinions. I would like to think that the people I have spoken with are open minded and willing to listen to other's points of view.
Our community, while fractured into smaller groups with their own ethos, their own core structure and their own personal views are wonderful groups. Each person, owner and blogger I have spoken with are GREAT people with wonderful messages. Imagine if we could all sit in a room and exchange ideas that are facilitating change and hope!!! Our community would be a much different place.
People that know me know that I am a very opinionated person and my own beliefs about RAD Awareness is my only goal right now. It's what I do, it's what I am. I believe that no one child or adult should have to suffer in this day and age with the resources that are available today. While some organizations don't necessarily agree with my point of view, that doesn't mean a healthy exchange of ideas isn't possible.
I want that exchange to happen, regardless of our differentiating points of view.
These groups, doctors, bloggers and clinicians are the glue that holds the RAD community together. All of us have a role to play. All of our messages are the same. Hope and healing. Everything else is pride and opinion. I wish all of us could remove that for a week and begin a massive dialogue. It would be truly awesome.
This entire post is of course an opinion! Wouldn't it be neat if someone emailed me and said "I DON'T agree with your position and this is WHY." At least it's constructive dialogue that begins a relationship that can eventually lead to effectual change.
Until our pride is off the table we are treading water in our own pools in our own backyards. We are only letting people in that we like, know and subscribe to our belief system.
Let's all meet at the YCMA and do some laps together, as a community.
Michael
http://www.rad-online.org
Wednesday, August 12, 2009
Slammed, shoved around, but still here, and still kicking
I know I haven't been posting as much but as you can imagine, I have a ton of stuff going on. A book just published, OFAAT to run (To mention, we may have snagged a new client) and of course, rad online.
I am writing today because I received a very disturbing email. Not from an angry ex girlfriend, not from a family member, but a professional contact that I hold in high regard. The contents of this email were at best not complimentary and it's really screwed my entire night/morning/work day up badly.
It really has me bugged. Then I realized why. This email wasn't about professionalism or working together for change, it's about a stupid, petty grudge. This email screamed "I am really mad at you for something" and wasn't a constructive look at anything.
That really has me bothered. I was taught in the professional working world, when the message of healing and hope are paramount that's all that matters and unity is more important. Professionalism trumps emotion every time and it seems like lately, some people I work closely with choose emotion.
I also realized just this morning a few things that have me both overjoyed and darn near exhausted at the same time.
Since RADOnline opened I have:
- Made great new professional contacts
- I have lost people who I thought were my friends
- I have been ORDERED to remove public content from rad online
- I have been told RAD Online is a "disappointment"
- I have spent hundreds of hours campaigning and networking
- I have lost contact (for whatever reason) with alot of people that used write to me on this blog all the time (Still stumped on that one)
- I am literally working all most 24 hours a day every day to stay on top of things
- I am heading out of town of which I am very excited, tomorrow.
I will probably change this blog over to RADOnline when I figure out how to do that, simply because this blog pertains more to RADOnline than OFAAT which is a totally separate bear.
A lot of negative things have happened since RADOnline has opened but a lot of positive things have happened as well. I am quickly learning that to bring a message of hope and galvanizing a community that is generally pretty quiet is a tough, tough thing.
I have not however given up, and I WON'T GIVE UP. RADOnline and it's volunteers have called news stations, forged alliances with really great RTC's, Non Profits and Blogs. We have also made INTERNATIONAL contacts as well!! RADOnline is getting ready to be covered on a LOCAL news station as well!!! We have contacted social agencies, foster care systems and the biggest one of them all:
The White House! (That's right! We mailed a R.A.D. Online informational packet directly to Obama!! Hand built, hand laminated, hand mailed!)
I will however not give up there. This is just the beginning. I guess from a "personal" perspective my message of positive change has to come at a cost. I have to be willing to lose friends I thought I had and I have to expect a certain amount of discord from those that don't see change and community as paramount.
Without sounding like I am rambling, I guess I am just feeling the effects of trying something that is massive in scale with many different views that will of course clash from time to time because R.A.D. is such a personal issue for so many families, I feel beaten up and bloody, but still hanging on. I feel as though I have been put through the proverbial ringer.
Well, that's all for now! I will have a ton of pictures of our trip to the RTC that RADonline is touring!
Hoping this blog finds you and finds you well.
Michael
http://www.rad-online.org/
Monday, August 10, 2009
My CHALLENGE to RAD Survivors.
We are a band of brothers and sisters who have struggled against our own minds in a battle that has raged for years. We are a group of survivors that have given our tears, our blood and years of our lives to defeat an invisible enemy. We are the ones that professionals said "You will always be this way". We have survived. We have flourished. We have overcome the odds. We have not given up hope. We are stronger then we think and we have a powerful voice for all those willing to listen. Many want to listen.It's our turn now.
It's our turn to claim our lives. It's our turn to tell our stories. Today, we can rise as a group that have suffered and caused suffering. Our stories we can share with the hopes that another may not travel the paths that have caused so much suffering. Today we have the opportunity to talk about the shadows and the cold nights. Today, we quite literally may hold another's lives in our hands by the bravery to come forward and let the world know of our muddled, but powerful existence. Today, we can begin to repair the damage we have done through a collective voice of hope and healing. It's our turn to give back to so many people that dedicated their lives to our very survival.
We have suffered quietly and alone but no longer. We have a common bond of dried tears on our worn faces each with it's own tale of both happiness and tremendous sadness. The very destruction of our lives will be the rebirth of other's. We no longer have to live in shame. Today, we can stand together and save a life that's worth saving. Today, we can begin to repair the damage of our pasts with the cleansing acts of kindness towards another that is still quietly hiding in the dark.
No longer must another human being huddle in the corner of a dark room quietly suffering from the invisible enemy we all have come to know so well. Our trials, our tribulations, our tears have a meaning:To educate others.
Our sufferings have happened so that another may listen and learn from our stories. The insanity of our lives can bring calm to the storm in the mind of another that hasn't had the chance to realize their own potential voice. The cycle of silence must be broken and today, we can end that cycle with peace and understanding. The shame of our actions doesn't outweigh the possibility of a life we may save tomorrow. As we quietly sit in our homes, leaving our stories dormant collecting the proverbial dust, another is suffering our same fates. It doesn't have to be this way.
What I am asking takes bravery, it takes courage and it requires fortitude. We as R.A.D. survivors posses those qualities simply in the fact that we have survived everything we have. We ARE brave. We ARE courageous. We must overcome the fear of exposing our deepest fears of judgment and realize our most endearing quality: Strength.
We have survived and today we flourish. Let us help another flourish and live in the peace that we as human beings are given by our right to live. Let our voices serve as the testament to the human spirit that someone else believes they lack.
It's time to stand together as brothers, sisters and a family born through tragedy and strife. We are a family of survivors.
We must expose that tragedy and strife and lend our hands and our lives to those that need those qualities.
Otherwise, our sufferings are truly in vain.
Sunday, August 9, 2009
Religion and R.A.D. A possibly combustible mixture.
**This post is not meant to offend ANYONE. These are simply my thoughts. Religion is special for each person that it touches. While I don't hold a particular religious belief, It's not my intention to offend anyone of any particular religious interest! I respect everyone's religious background!**
Many of the forums that I have spoken with are "Faith based" forums and I have to tell you R.A.D. and religion don't mix well. I am not a particularly religious person (in fact organized religion in my mind is ridiculous to the point of absurdity).
I remember in a previous post at the age of 12 I thought I was the devil himself. Today, I realize why I believed this. I was TAUGHT that I was the devil. Every Sunday I listened to how I can't have sex before marriage, masturbation was a sin. In fact, almost everything was a sin in my mind.
The precedent had been set.
Many, many R.A.D kids and R.A.D. adults have been cast into a world of both abuse and horror that many people will never completely grasp. We have been the abusers, we have been abused, and for many of us, those horrible memories linger in the back of our minds, ready to strike when the time is right. Religion is a major player in the R.A.D. puzzle in my mind (I'm not a professional, just a R.A.D. survivor).
My parents took me to church because I guess they thought raising me in a Catholic home was a good thing. I can't blame them as they are very religious people. What they and I failed to realize was that everything those pious priests spoke against, I was already knee deep in. As a child, the message I took from religion was that sleeping with a school teacher meant instant hell for me. For a confused, angry child, religion can be an incendiary combination. No, I wasn't the devil, but the "devil" was in my life because of the acts that I engaged in before I understood the context of them. That only scared me.
I see bloggers that are DEEPLY religious going so far as quoting bible passages and I wonder what are their R.A.D. kids taking away from those messages? "Because I had sex when I was 9, I am going to hell?". As a R.A.D. survivor, I can tell you first hand I thought I was the devil because of the basic teachings trying to "save" me from a lifestyle that I had engaged in both freely and against my will. I can understand now why that association formed. Hell and brimstone.
Many R.A.D. kids have already had sex. Many R.A.D. kids and adults have killed. Many R.A.D. Kids and R.A.D. adults have abused. How children process something they don't understand by listening to terrifying stories of hell, the devil and damnation could very well only be making the child feel even worse and setting a precedence:
If I am already going to hell, why stop now? For years, I didn't stop, I only got worse. I was already dead and hell was the only place I was going. Why improve my life?
That's how, 27 years later I came to understand why I felt like the devil. when I was a child, night after night I would slice open an arm to see if I was bleeding, or if I was devoid of human blood and spirit. We have religion and it's absurdity partially to blame for that precedence. The messages that R.A.D kids take away from organized religion can be the exact opposite of what you want them to take away from it.
I say this to all highly religious parents and bloggers out there.
Be VERY careful with what your R.A.D. child takes away from religion and it's teachings. If not, they may very well be taking away a message that they are already doomed.
Friday, August 7, 2009
Sharing some of my life with the R.A.D. Community. (A suggestion from a friend)


MMMMM LUNCH AND DINNER! MRE's!!

A primitive survival shelter.

It was 20 degrees that day, Ohio River!!

10 degrees outside. Ohio River banks. Note the primitive Shelter! I was cooking food on fire heated rocks!!
Hiking at Eastfork Park. I didn't have a pack on because #1 way too warm #2 it was only a 7 mile hike through some basic hilly terrain. Note the military water canteen!
A beautiful sunset picture on the ohio river bank. What you don't see is the 10 degree wind.
Thursday, August 6, 2009
It's all our fault.
This post is probably going to get me into some trouble, but unpopular speech every once in a while must be embraced even with the limpest of arms. So, any mean, nasty or inflammatory posts will be automatically deleted.
It is our faults you know. Everyone knows what cancer is. Everyone knows what AIDS is. Everyone knows what bi-polar is. Almost no one knows what R.A.D. is. And it's us that we have to blame. We live in a world were information is transferred at light speed. We are more connected to one another than any other time in human history, and yet Reactive Attachment Disorder always receives the same response:
"What the hell is that".
Since my community portal has opened, I have been on the phone with reporters, doctors and social workers and the answer is always the same. "What is Reactive Attachment Disorder?" While blogging is a great way to expose the myth's of the disorder, more can be done. We can get out, we can speak, we can become united as a community and bring this terrible disorder to the table and begin a dialogue.
One of the problems (And this is just my opinion) that while blogging, forum browsing is a great way to get the message out online, it's not the kind of fundamental action that will FORCE school officials, lawmakers and members of our communities to listen to us. Each of our stories is an important puzzle of R.A.D. and each story is special.
I have heard the argument lately "Too many parents are scared of legal repercussions" by telling their stories. They are afraid they or their children will get into trouble. While I understand that fear, we have to consider as a community what good this is doing. Sure, we may be hiding behind the cloak of "Safety" but we aren't changing the minds and the perceptions of those around us. We are huddling together in our little online forums and blogs discussing issues that we already know about. We are a cliche and that's even worse then saying nothing.
As long as we as a R.A.D. community hide in the shadows afraid of the big bad bear another family may very well be trying to recover a picture out of a burned down home. This happened, recently in Ogden, Utah. Our inability to move past the realm of the online world is WHY no one knows what Reactive Attachment Disorder is. We need to do more and we can do more.
Every blogger out there has the strength, the courage and the fortitude that many other's in the world don't have. We should capitalize on that bravery and galvanize our group. We as an RAD community must come together and begin grassroots programs that don't depend on the online presence. Not everyone has a connection to the net, and not everyone can afford it. Some families have children right now clutching a kitchen knife threatening to kill someone. Are they somehow to magically find our blogs in hopes of some solace and understanding?
Once again, I am not saying the bloggers and forums aren't a great tool, they are. I salute everyone with the bravery to come forward. We must transcend this online world and step into the real one with our messages. They are all powerful messages. Your words could and may very well save a life, TODAY.
We can no longer hope that a family in trouble will find us. We need to find them. Our unified message of hope and healing should no longer remain in the shadows of a blog or a forum.
It's our fault the world doesn't know what R.A.D. is.
Tomorrow, however, is a different story.
Michael
http://www.rad-online.org
Wednesday, August 5, 2009
Happiness and R.A.D. Two Words That Don't Mix
One issue that I never really tackled with R.A.D. is happiness. Those that suffer (or at least) never understood the basic idea of happiness. While I knew the definition of happiness, it was for me, just another word. I was more content hurting someone or something as opposed to being "happy". Sure, I had poignant moments, but the base emotion was totally devoid in my life.
I never understood why people hugged each other and I never really understood why families got together and did things together. I never really completely understood the concept of closeness and unity within a family unit. Joy for me wasn't in the context of healthy, natural things. It was of wanton destruction and depression.
My parents when I was younger talked about how I felt like a "Board" when I was younger. There was simply no connection to anything. I didn't understand why people laughed and had friends. It just made no sense to me.
Even today, it's still very hard to maintain friendships. I still question why ANYONE would want to befriend me, lest love me. It's an emotional disconnection that started 32 years ago. To live in a world without the need to connect was paramount for me.
It's extremely hard to describe. Marythemom asked me what it was like. I told her, it's not like I missed it, because I never understood the need to connect to anyone or anything. In this sense, the motel syndrome took over. (Once again email me about this) I was able to operate as a robot. Alone is what I understood and ironically I was as happy as one with R.A.D. could be.
To accent this point here is an example:
When I was younger I was buy some smokes and a group of guys asked me to come over and hang out. We sat around and talked for a while. It was kind of cool. We talked of course about women, beer and more women. You know, guy stuff. After about 25 minutes of talking, I ended up at home. However, for the next few hours I was bawling. Why? My case manager asked me why I cried about the event? I said "Because I have never really had someone just come up and talk to me like a regular person." This was partly my design.
Even to this day, I have a hard time connecting with other people simply because they don't share the same experiences that I have had. How could they? We meet others and have friendships based on common experiences. For me it is still very odd and uncomfortable to hug other people or have friendships. I don't have that switch in my body that says "Hey! This person is a friend, they aren't going to hurt you.". I have of course learned how not to self sabotage but I still maintain a big distance from other people.
For a R.A.D. person, (Instead of using the ubiquitous RAD CHILD), they live in a sea of people, totally alone, floating along waiting for rescue ship to come by that never does. It's living in a world on your own, even though those around you try to understand your situation but can't. It's a terrible place to be in.
There are still days where I have to remind myself I am trying to do good. I am trying to improve. And then there are days like today where nothing really matters and the depression takes over, full tide. These are days where I and every other R.A.D. survivor has to remind themselves they are beautiful people no matter what they have done or had done to them. It's day's today that RAD sufferer's have to reach out and begin to talk, even though it's the hardest thing for me/them to do.
Reaching out isn't another word in our vocabulary.
Michael
Sunday, August 2, 2009
What is a rage like?
People have told me the people I hurt, the animals I killed and the general rampant destruction was a choice. I can tell you right now, from a R.A.D. perspective, there is no choosing involved. When a rage begins, the loss of control is a complex and the victim of a rage collapses into a darkness that I can only describe as one thing.
The abandonment of self.
The total lack of physical and mental control. It's a dark corner of your mind and your body that you literally have no control over. The only thing that you feel in a rage is a searing, white hot anger that has come from no where but you know it's been there the entire time, ready to bubble up again.
The only thing you want to do in an R.A.D. rage is kill and destroy. There is no choice, and nothing else matters. It's a deep and very profound experience that grips your mind and your body and that very lack of control makes it almost impossible to understand to the laymen or a parent who's house has just been burned down by an angry child.
The rages continued for me until something was dead, something was burned down or I was emotionally and or physically exhausted. There was no stopping me and anyone that did try to stop me would end up dead or in the hospital at the very least.
Rages differ from anger fits in that you can control and regulate your responses to outside or internal stimuli. With rages you cannot regulate that, and there is no magical switch. At least there wasn't one for me.
One particular incident that stands out with me, when I heard the neck snap of an animal that I threw against a wall, the anger only got worse. Not because I just killed again, but because I couldn't control what was happening. I couldn't stop my own hands from destroying whatever I saw.
In a rage, I could feel, I could understand and I could see what I was doing, but there was no way to regulate my actions. The anger came over me like a tidal wave and I was drowning in anger. When I would have rages I would stop thinking, my survival mechanics stopped.
The entire world stood still. It was only me and the anger, with no where to go. I was trapped in a hellish room and there was no door. I simply had to ride through the anger.
For those that don't understand, let's put a perspective to the actual event.
We all watch movies. We go to the theatre. We see a scary movie. We can see whats happening, we can hear and emotionalize, but we are out of control. We are along for the ride. That's exactly what a rage is like.
What is important (And I am not a professional) is finding the triggers that cause those rages. When I was a child, any time I perceived a loss the rages would instantly begin. When my sister left for Greece, I killed her cat. When I lost a girlfriend (Huge issue) I literally ripped my parents house apart from the ceilings to the carpet. Literally. Everything in the house was destroyed. Glasses broken, shelves tipped over, animals dead something burning.
Once the anger passed, I was usually clutching a dead animal or watching something burn. As soon as the rage passed, just like a tornado was in shock as I witnessed the destruction that I myself caused. This of course, only made it worse. I remember being 12 years old and crying myself to sleep, shocked that another animal was dead. I knew in my rages that animal was going to do but I didn't want to kill it. I wanted to die and I couldn't. I was in hell.
As much as i LOVED the violence, I detested it. I clung to it as a way to expression my emotion. Those of us that understand the expression of violence and why it plays such a huge role in a rage. We are fascinated with gore, with death and blood. It is no wonder that this fascination floods over when we rage. It's our best mechanic. It's a love/hate relationship. I can promise all R.A.D. parents these rages aren't ABOUT YOU. It's simply survival mechanic that unfortunately results in terrible loss of life, property and the abandonment of self.
I write this not to shock, and not to offend but educate. I am sharing this part of my life with the R.A.D. community so they may have a better look inside a rage and how they came to be with me. Perhaps, if we look deeper into the triggers of rage and the perceived/actualized loss model there will be less lives ruined by a R.A.D. rage.
Michael
http://www.rad-online.org





